Entertaining Stories

Welcome to another edition of Lisa Burton Radio, I’m your host, Lisa the robot girl, and my guest today has a very important job. In America we would say he’s a stuffed animal, in other places they would refer to him as a plush toy. “Welcome to the show, White Bear.”

“Hi, Lisa. It’s a pleasure to be here. Thanks so much for choosing me to be your first stuffed animal interview!”

“Pleasure to have you. You’re best friends with someone named Angel. How did you two come to meet?”

“As far as I know, before meeting Angel, I lived always lived in a doctor’s office at Shriner’s Hospital in Tampa, Florida. I spent most of my time at the computer doing research or hanging out on a bookshelf. Lots of kids came in and out of that office, but they never paid any attention to me. One day, a…

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For those who have been reading my blog, I know you follow the ups and downs in the life of my niece, Angel. When she was about four, she went through her first kidney transplant. When complications set in, we were worried, no, we were scared. When we lost something very special to Angel, we were afraid it was a bad omen. But after weeks and weeks in the PICU, she made it to the floor. Unbeknownst to her, because she was in a medically induced coma, many people came together to bring that something special back to Angel. Frankly, it was just the magic we all needed. Shortly after, things began to turn around and Angel made it home. That something special was a stuffed bear. For years, we have wanted to bring that bear to life, for Angel. Now, we hope to bring that bear to life for all kids who are seriously ill and face long stretches in the hospital. So here I share how it all came together, this very special project for a very special girl. Please click on the link below to see how it all began, and where this project is going. I am really exited to share that we have published my first Children’s Book and there is a whole White Bear’s World to come.

http://www.harmonicfactory.com/bookshelf/

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Back to the place she knows so well, and welcomed by those who are dedicated to help, but have become family. Tampa General Hospital, where everybody knows her name. It was a simple gesture, saying welcome back on the board in Angel’s room. To a casual observer it may not even be noticed. To me, as aunt of one of the most amazing people I know, that gesture was symbolic of the many years of love, heartache, triumph and hope that we have all shared in the amazing 12 years of Angel’s life.

Angel came into the world  at St. Joseph’s Women’s Hospital, but soon found a second home at Tampa General. She was born with Vater Syndrome, a relatively rare set of congenital anomalies requiring life saving and life preserving surgeries, medications, an amazing and dedicated set of physicians, ARNP’s, nurses, hospital employees and the super hero (thank you for the words my beautiful friend across the pond) mom whose dedication and love help Angel thrive in ways no one could have predicted.

Back in the hospital after only a few days home, I had time again to reflect on how lucky a chronically ill child is to have an envelope of love and dedication surround him or her in an environment that us foreign to most people.

After just a few minutes in the room, it was time for shift change. A nurse that had never met Angel came in. This is rare. Meanwhile a nurse from The IV  team came in put a new sonogram guided IV into her left arm because the one in her right arm was no longer useful. That nurse had cared for Angel in the ICU  many times before. Another nurse stopped by to sit on the bed, hug Angel a few times, talk with the new nurse and reminisce. Even though she
had cared for Angel only a few days before she said, “I remember when you used to make me call you Princess Fiona.”

I had forgotten Angel’s Shrek period, but it did remind me of the day that Angel was dressed in a beautiful dress for her hospital wedding to Diego, a cartoon character she loved so well. 

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So then began the trip down memory lane. Remember when Angel had the sign on her hospital door saying that all who enter must put money in her bank? Remember when we used to spend every Saturday snuggled on the big blue chair watching movies till we fell asleep?  Remember when Angel would say, “be right back,” and walk to the other side of her crib to pretend she was going to the potty?”

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How about all the Halloween parades and the Christmas parties? Or what about last month when the cashier in the cafeteria told Angel she was sorry they didn’t have donuts anymore? Or the time we sat for hours watching her sleep after the takedown of her colostomy or when she sat in her doorway crying, “water” when she was on fluid restrictions and none of the nurses wanted to walk by her room?

Most people can go their whole lives not entering a hospital. Some go occasionally and don’t give it much thought. For some, hospital is a home with extended family who come to know and love each other, know spouses, children, uncles, aunts, cousins and grandparents. For those people, I hope they have a place to go to like TGH. A place where doctors and nurses stay, and care, and keep giving.

“Be glad there’s one place in the world
Where everybody knows your name,
And they’re always glad you came;
You want to go where people know,
People are all the same;
You want to go where everybody knows your name.”

source: http://www.lyricsondemand.com/tvthemes/cheerslyrics.html

Welcome back, welcome back, welcome back.

Love you, Angel.

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