My daughter received a kidney transplant in 12/2015. She is now 12 years old and she was on dialysis for 8 years prior to receiving her transplant. She has other health issues, besides her kidney disease and it was a combination of reasons that she needed to wait that many years for a transplant. We […]

via BK Virus and Kidney Transplants — Have I told you about the time?

The China Girls

It was a black film canister, rattling around the bottom of an old Naturalizer shoebox labeled “photos.” I opened it, wondering if it was a roll of unused film. Instead, I found a twist of white tissue paper wrapped around tightly rolled black-and-white negatives. I held them up to the light. At first I saw…legs.

Tiananmen legs

Then, people with bicycles.

Tiananmen bicycle people

Wait, that looks like the Monument to the People’s Heroes. Is that Tiananmen Square? With banners? Tiananmen monument

Next, a white form rising above a crowd, holding…a torch?

Goddess_crowd

Oh man, is this what I think it is?

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Truth is funnier than fiction.

World's Best Site - Thoughts on Medicine and Other Topics

Have you received a survey after you visit your doctor? You may be surprised to learn that how you rate them may affect their pay, their mental health, and even possibly your health.

Surveys, as administered by Press Ganey, and the CG-CAHPS,  are questions regarding various aspects of the care patient’s receive. Although that may seem reasonable, besides potentially incentivizing bad medicine, it’s exaggerated because they only count “top box” scores. That means on a scale of 1 to 5, only the 5 scores count, so that getting a 4 is no different than getting a 1, and if the score is 0 to 10, then only a 9 or 10 count. The scores only count if you answer “Always,” except for the question, “Using any number from 0 to 10, where 0 is the worst provider possible and 10 is the best provider possible, what…

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I have been wanting to write part two on “the Mask” but nothing I share could compare. Please read about my beloved niece and send us some
good juju.

Have I told you about the time?

It is now 2 days before the 6 month mark of my daughter receiving her Kidney Transplant. It was a very long time coming and you can’t even imagine the emotion that goes along with it. The joy, the excitement the unknown, the fear, the realization and that is just some of it. As a parent who is been through an enormous amount of life changing events throughout my not so long yet life. I am quickly approaching 45. In the beginning of this journey with my daughter her Kidney disease was just a part of her very complicated little life. She has VATER Syndrome. This is actually an acronym for some anomalies that seem go together in similar way when a child has a Neural Tube defect. Many times this results in Spina Bifida, which has 4 different types 2 of them being non important life factors. For the…

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