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Sometimes I don’t have the attention span to pay attention to a “new” show on Netflix.  That is when I rely on a “go to” show. A “go to show” is  one that has familiar characters and interesting story lines, but episodes that stand alone.  I can fall asleep, wake up, go to the next episode and not miss anything.  It is a show that I can watch over and over and not get bored, yet, not see for years.  This kind of show is almost like comfort food for the brain.

My “go to” show is NCIS.  Currently I am watching Season 3, Episode 13.  Besides the quality of the show and the great characters, there are 12 seasons on Netflix.  I can binge for hours and hours or not.  What a great feeling.

Your favorite “go to” show?

 

 

White Bears World

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Sometimes the path we take has unexpected barriers. For children with complicated illnesses every day can bring unexpected barriers. There is no better support for these children and their families than competent doctors and other parents and families who have gone through the same things. There is a way to get past the barrier and keep on going.

The purpose of White Bear’s World is to become a place for children to visit while they are in the hospital and even when they are home.  Plans for interactive games, apps and other creative outlets are only now in their planning stages. It is going to take a lot of work and a lot of kind hearted people offering their talents to make our vision a reality.   So far the assistance we have gotten is quite overwhelming and very soon some of it will be shared.

We also hope White Bear’s World will become a…

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sapling-154734_1280My niece is  being taken back to the OR. It is a very long complicated surgery for an amazing and complicated kid. She is in good hands. She is so much stronger than me because I just want to cry. But I won’t. She is having her her rib cage put back where it belongs and her scoliosis taken care of with rods. Know what she said to me this morning? When I see you next I will be 4’4″.  She really is the coolest kid.

 

 

 

Inspiration from Zion: This is a Love Story

How many people stop to consider what life is like, after the terror attack is over?

Very often lives are changed, forever.

The murder of Dafna Meir was one of the more horrifying attacks Israel experienced last year. How many people stopped to consider Renana afterwards? What will her life be like?

Eldest of Dafna and Natan Meir’s six children, it was Renana who interrupted the terrorist in the middle of stabbing her mother to death. It was Renana who saw the terrorist trying to pull the knife out of her mother’s body so he could stab more people.

It was Renana who saw Dafna struggling to keep the knife inside her body so that he couldn’t hurt her children.

3 of her 6 children were in the house. Dafna’s refusal to allow them to be hurt and Renana’s screams were what made the terrorist give up and run away.

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From a mom who knows.

Have I told you about the time?

When it comes to talking about my daughter’s health, the words come easily. She is complicated at best and if you read my other posts you can learn a lot about her. She is now 12 years old and just about 7 months post Kidney Transplant. Everyone just assumes that since she got a kidney everything is better. She is no longer in need of dialysis treatments but she is certainly not out of danger. Her health has improved but she is far from healthy.

The first few weeks labs were required twice a week and have now dwindled down to every 2-3 weeks. During one of her very first set of labs we found out that she has a virus called the BK virus. Apparently this particular virus can lay dormant or can creep up and attack the kidney. It has been the most likely cause of a transplant…

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There is no greater gift than love and friendship.

Have I told you about the time?

My daughter is 12 years old. She started on Dialysis when she was 4 years old. A tiny little thing full of life and not much of a clue as the the troubles she has already seen.

Funny as during the first few weeks of dialysis, I remember asking Dr. C is there like a support group or something for families, how do they learn to adjust and  keep positive, and he said you are the support group, look around the rooms there are other Moms, Dads sisters and brothers and sometimes other loved ones whom sit with their Dialysis patient, who rub their feet when they cramp, who adjust the tv, and step away when the teacher comes.

At first I did not understand why there is not an actual group or something. Although looking back I totally get it now. You learn to become Kidney Families. We have…

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