My sister has been away from her blog for a while. Normally I would never ask people the world over for a favor. But this is a special circumstance. I know some of you follow my niece’s journey. She is 12 now, and things are not going well. Worse yet, she is starting to understand things I guess I always hoped she wouldn’t have to. I am going to link my sister’s latest update. All I ask is that you please read it and send some positive vibes out to the universe on behalf of Angel, her sister and brother and my sister. We could use the support and I thank you.
Below the text is the link
We finally got to the source of Angels pain and fevers. Her native kidney is covered in cysts and is very infected. It would seem easy to want to just take the kidney out ,but as Dr C explained is not that simple. First off infection needs to be under control secondly it would be an extremely complicated surgery. Her native kidney was not exactly in her back area like usual but slightly more in the middle of her body. This is why it was so easily believed to be a stomach or bowel issue.
In addition to being in horrible pain and high fevers on and off she is feeling terrible emotionally. She is missing school which although she has made it to a few classes ,she was truly looking forward to school this year. She is feeling sad that her body doesn’t work properly, she is feeling sad that she doesn’t know if she will ever be able to have children and a family of her own, she is feeling sad that she doesn’t have her comfort zone and support from years of seeing her dialysis family three times a week, her Dad being gone and her life has just undergone so much change in the last few years.
Seeing my daughter crying in pain for as many days as I have is totally overwhelming and if it wasn’t for the support from my Dad and sisters and my children I would really be a basket case. I have been blessed with a few friends who check on us regularly and I am totally thankful for that.
Please keep Angel in your thoughts as she will be in the hospital for a while,the pain will continue for a while and honestly we have no idea how much this will affect her transplanted kidney and her overall health.
Tomorrow morning she goes in to have her stent in her new kidney replaced. I can only hope for her to feel better and know she is truly an amazing little girl who is a true inspiration